Saturday, December 4, 2010

Second Liberation Procedure - December 3rd, 2010

It's Saturday morning and I'm sitting in my hotel room at Hotel Le Blue in Brooklyn, NY, the day after my liberation procedure by Dr. Sclafani and another doctor who he was training to do the CCSVI procedure.

I have not written in my blog since October because I no longer had any improvements.  I put my procedure on YouTube and sent the link to Dr. Sclafani and this is what he had to say about it: 
dear Sue
i reviewed your youtube video. You have a very pronounced stenosis of the valves of the azygos vein that needs angioplasty. the valves are not opening properly. it is very well seen on the video.
Also the right jugular angioplasty seems undersized. Would like a second look at the left jugular too

WELL that is how I ended up here getting a second procedure.

On Thursday, I had an doppler ultrasound at King's County Hospital where the technologist saw abnormalities, reflux and valve prolems with my left and right jugulars.  I also met two people who were scheduled for the procedure on Saturday.  There was a lady from Toronto and a man from Long Island, NY.

On Friday, I had my procedure at the American Access Care in Brooklyn.  I was in the procedure room for close to 3 hours where I had the following done: The wire and catheter was inserted in my left groan area. The first thing he checked for was May-Thurner Syndrome and he confirmed that I did NOT have May-Thurners. Then he checked my right jugular which had restenosed (blocked back up) and they angioplastied it using a much bigger balloon than the one in Poland which was only a 10mm.  I think it was an 18mm but I have to wait for the report to confirm this.  He then proceeded to the left side where I had two places angioplastied.  One in the area of the collar bone and the other way up by the ear.  In Poland they had told me that the flow was a bit reduced but it was not worth the risk to angioplasty. Dr. Sclafani did mention that my vein on this side was much more narrower than the right side.  They then proceeded to my azygos where he proceeded to do an angioplasty there. Here Poland saw no problem with this area!

I was in excellent hands yesterday.  The staff and the care I received was top-notch.  I should mention that I got sick after the procedure, which they suspect was a result of the medication I received during the procedure.  I also have a history of not tolerating pain medication very well, so I could not enjoy the wonderful sandwich they had prepared for me.  A nurse is on call 24-hours and the doctor is available at any time.  I actually spoke with him this morning to report nausea and weakness from not being able to eat and drink.  But I'm happy to report that this has since past and I feeling much better.

I will keep you updated as to my progress!


  1. Excellent, Sue! An up-side from being under-treated the first time is that you might have a better handle on what causes what than most anyone else.

    Do keep us updated on your progress. Best to you!

  2. Hey sue,
    Good luck with everything, Hope the recovery goes well. Anxious to hear all about it :)
    Chantalle Gauthier
    Will their be hope for us, I sure hope so....

  3. Great News Sue we have being hoping to hear from you and we are both so excited for you , can't wait for our morning chat so you can fill me in . keep safe gf and drive safe on the trip home xoxo love Sindy and Gord

  4. Glad to hear the good news. Call me when you get home so we can chat. Drive safely on the way home.
    Joce and J-P

  5. Great news Sue! Can't wait to see you and hear all about it.

  6. Fantastic Sue!!
    So glad that you were able to be worked on by the best:)
    I love your beautiful blog and your great courage!!
    Keep us posted please..all the best from BC Canada!!

  7. It's too bad that you had to go through another operation and hopefully it will be worth it and you'll soon be dancing around!! The best medicine is having your family and friends to support you. Take care Sue.
    Your friend Diane Schryver.

  8. Hi Sue, It's good to hear that the procedure went smoothly. Hope you're feeling well---keep us posted!


  9. Good to here from you Sue. Edith and I are trying to decide our next move. Your info sharing may help us to decide. Hope you behaved in the hospital.

  10. I am curious how do you fell after your second procedure? Any improvements (comparing to the first?)